Lebanon OH
3-15-2026 10:22pm

Landsman Introduces Bill to Lower Costs for Patients with Rare Skin Disease

WARREN COUNTY, OH -- Epidermolysis Bullosa (EB) is a rare genetic condition that makes the skin extremely fragile, which can cause several medical complications. EB affects 1 out of every 20,000 births in the United States.

Landsman introduced the Shane DiGiovanna Act – legislation that directs the Department of Health and Human Services (HHS) to study whether paying for wound care through Medicaid would reduce hospital visits for EB patients and lower overall costs. Then, HHS must report back to Congress.

Shane DiGiovanna is a constituent of Landsman’s who has lived with EB and its debilitating symptoms his entire life. Despite these challenges, DiGiovanna has become a tireless advocate to raise awareness of the disease and support those impacted by it.

“Today marks an important step forward for patients living with Epidermolysis Bullosa and the families who care for them. The bandages that keep us alive can cost tens of thousands of dollars every month, and coverage is inconsistent or unavailable," DiGiovanna explained. "The Shane DiGiovanna Act will help ensure that Medicaid patients with EB can access the wound care supplies they need without bankrupting their families. They are not comfort items. They are essential medical care. I want to thank Congressman Landsman for his leadership and for listening to the EB community. Together, we can make sure that no EB patient is denied the care they need simply because of the cost of the bandages that keep them alive.”

“Shane is an incredible person with a huge heart, and he has become a good friend to me. We are so happy to have worked with him on this bill to help those living with EB get the best care to live better lives,” added Landsman.

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